![](https://centreinfo.leucan.qc.ca/wp-content/uploads/2016/07/JV-Lectures-inspirantes.jpg)
Many patients and parents have put pen to paper to tell their stories.
Their journeys are rife with heart-wrenching questions: What now? Why? Read how these families have been forever changed by the experience.
The Leucan Information Centre has collected the main resources on the topic.
Consult resources: